Family fundraise so brave Connor can have life-saving liver surgery
THIS IS the little Bray boy who needs an urgent liver transplant due to a rare liver disease.
Conor Doyle, who will be two at the end of this month, was diagnosed with biliary atresia -- which effects just one in every 10,000 people -- when he was just a newborn.
A major fundraising event is now being held for the brave little Bray boy, who needs a liver transplant operation by the end of the year.
Conor requires a liver transplant operation which will be carried out at King's College Hospital in London.
His family have been on a steep learning curve about the illness since the diagnosis of biliary atresia was first made.
His mum Susan (35), her husband Liam (43) and their other children Jamie (13) and Emma (4) are from Crooksling in Brittas.
Susan confirmed that a transplant team from the London hospital will be travelling to Ireland to assess Conor's condition in June.
His mum, who gave up work as an administrator to care for Conor, said that at the moment if he gets ill and his temperature spikes at more than 38 degrees, it can raise the possibility of an admission to hospital.
When the diagnosis was initially made, she said that she had never heard of biliary atresia in her life and had to keep looking back at the booklet she was given on it during the first few weeks.
"Only four in 40,000 children are born a year with it," she said.
Susan said that she and her husband wanted to highlight the disease, as there are other parents who haven't heard of it until it is diagnosed.
And just days before this assessment takes place, on Saturday, June 26, a Citywest's Got Talent fundraiser will take place at the Citywest Hotel, with all money raised going towards the cost of Conor's medical care.
Television presenter Glenda Gilson will be among the celebrity judges taking part in the event.
Susan said that "anything left over will be donated to Crumlin Children's Hospital".
Little Conor has already been through an operation at just three months old at Crumlin Children's Hospital. However, he will require a liver transplant, possibly before the end of this year, his mum explained.
When he was diagnosed at three months old, he only had 10pc liver function until the procedure was performed to keep the bile draining.
The transplant team will decide where on the list he will go, she said.
For information on the upcoming Citywest event or to get tickets, call Citywest Hotel at 4010500.
A Bank of Ireland account has also been set up for monetary donations. The sort code is 90-12-98, and the account number is 47149101.